The Future of Asthma Pillars
Our four pillars for the Future of Asthma Initiative are to:
Identify and Implement Effective Care Models – Assess and adopt the most effective asthma care models suited for the Australian healthcare system, with a focus on improving patient outcomes.
Understand Patient Perspectives and Needs – Gather insights from people with asthma to ensure care approaches align with their expectations and requirements.
Enhance Patient-Centered Consultations – Develop and refine personalized consultation models that address the unique needs of each individual with asthma.
Create a Blueprint for Asthma Care in Australia – Advocate for policy and systemic reforms that support accessible, high-quality asthma care across the nation.
These pillars will guide our efforts to advance asthma care in Australia, prioritizing both patient-centered approaches and evidence-based models for lasting change.
CONSUMER RESEARCH
National Asthma Consumer Advisory Group
Ethics approval number: RES-24-0000-864Q
Why is this study being conducted?
Australia has one of the highest rates of asthma in the world, with over 2.8 million or approximately 11% of Australians living with the condition. Often people with asthma feel challenged by their day-today symptoms, whether that is in recognising their importance, affordability of treatment, access to good advice, difficulty with adherence to long term therapy and regular medical review or whether other issues make it hard to manage their asthma well.
Despite reductions in rates of death from asthma, there has been a significant increase in the proportion of people with poor asthma control in Australia over the last decade, a situation that needs to be addressed urgently.
Therefore, it is really important that we hear directly from the people who have asthma, so that we can better understand the reasons for this and put changes in place that address the barriers to better care in future. We are open to any ideas which will help to reverse this trend.
What does participation involve?
People from across Australia will be invited to participate, from city, regional and remote areas.
You will be asked to complete a questionnaire to ensure you are eligible for this survey. If so, a short questionnaire and an asthma control questionnaire-5 (ACQ-5) will be emailed to you along with the consent form. We will arrange a one-off meeting to discuss your asthma experience and ideas with you. This will be a one-hour Zoom meeting with a respiratory physician, a research assistant and 20 people with asthma. We will let you know the date and time details and provide the login link for the virtual meeting. It will be recorded for analysis by the research assistant to compile the findings from the discussion.
What about privacy and confidentiality?
Only the study research assistant will have access to personal information and any contact information you provide will be stored separately. Only preferred name will be seen by other participants in the Zoom meetings. No personal information will be shared with other researchers or made public.
If you are interested in participating in this study, please follow the link.
